Welcome to Misadventures in Alzheimer's
Updated: Jan 15
(Went to post this and see that I never posted the one I wrote a few days ago. Oh the joy of a new platform with a diminished brain, LOL!)
I was so surprised when I got a message on my old Blogspot blog from someone questioning if I was okay. I know the feeling of having someone simply disappear off of an Internet site. You worry that they died. I don't know why that's the first place we go, but I suppose it's human nature. Especially when you know the person has an affliction that could cause that to happen.
Anyway, I immediately went to the old blog, explained the situation, and invited anyone who was following over here. If you are one of those, glad you found me again.
As previously stated, I'm doing some copy/pastes from my old blog. Lazy? Maybe, but I want anyone new to read things that were important to me along my journey. I will date them, make corrections, LOL, that I see necessary as well.
Sept 28, 2022 I posted:
I had to laugh when I tried to look up my blog in Google. Google says it doesn't exist. Guess I'd better bookmark it so I can find it even if nobody else can. That's okay though. I'm hoping my family and friends don't stumble across this anyway as I'm sure they would not be pleased. But, I was hoping that others with Alzheimer's/dementia would be able to find it and that it would encourage them to plow forward instead of focusing on the negatives that they read on the Internet or what their ill informed doctors tell them.
This rant reminded me of all the places I went to when I was first diagnosed to find something, someone, anything to make help make sense of this. Actually, the Alzheimer's official groups are quite dismal for us. Good for those poor caregivers that are stuck with us though. So, I joined a couple of Facebook groups. I left one almost immediately as all the posts were from caregivers complaining about how horrible their lives were because they had to deal with terrible behaviors on the part of their charges or loved ones. Their lives were ruined and they were so miserable. They each came with stories of some incident to frighten me even more of my future. So, I found a group that was just for those with Als or Dementia. Perfect, I thought, until one member was so upset at her diagnoses that all she could post about was was to end her life. Really? Well, not one to mind my own business, I proceeded to advise her to focus on the things that she could do instead of the things she couldn't. I guess I really hit a nerve though and got blasted for thinking that someone should actually find something positive in life. I left that group as well. Now, the only one I follow is Gail at the Too Young For Dementia blog (https://dementiaalzheimers.home.blog/) because of her positive and upbeat approach. Between the two of us (and there may be more, I hope) we will change the face of dementia.
So, on a lighter note:
I had cataract surgery on both eyes, three weeks apart and am finally cleared to put on make-up again. I still have to wait three more weeks for the corrective glasses because of the double holiday. That's okay as I can see so much better after 20 years of trying to explain to doctors and visiting specialist after specialist who wouldn't take the time to listen. I finally gave up and just went to our small town local eye doctor who was amazing. I am a happy camper.
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